الفهرس 
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Abstract
Systemic Lupus Erythematosus is an autoimmune disease, which means the body’s immune system mistakenly attacks healthy tissue. This leads to long-term (chronic) inflammation. Also Lupus is characterized by acute and chronic inflammation of various tissues of the body. Good health promotion is essential to managing lupus; as individuals with SLE can improve their prognosis by learning about the many aspects of the illness as well as closely monitoring their own health with their care providers and maintain their quality of life (Ebertsias, et al., 2011).
Aim of the study:
This study aimed to evaluate the effect of health promotion program on the quality of life for patients with Systemic Lupus Erythematosus through the following:
7. Assessing the quality of life for patients with Systemic Lupus Erythematosus.
8. Planning and implementing health promotion program for patients with Systemic Lupus Erythematosus.
9. Evaluating the effect of health promotion program on the quality of life for patients with Systemic Lupus Erythematosus.
Research hypothesis:
This study aimed to test the following hypothesis:
• The implementation of health promotion program will affect the quality of life for patients with Systemic Lupus Erythematosus positively.
Research Design:
A quasi-experimental design was utilized to achieve the aim of this study.
Research Setting:
The present study was conducted at Rheumatology, Nephrology, Immunology and outpatients clinics at Ain Shams University Hospitals.
Subjects:
A purposive sample of 70 patients diagnosed with Systemic Lupus Erythematosus was admitted to the previously mentioned settings.
Tools used to accomplish the aim of this study:
3- Health assessment questionnaire for patient with SLE: it was interview questionnaire for the patients with SLE, to assess the health needs of the patients. It was adapted and modified by the researcher.
4- Lupus QOL Questionnaire: it was a 34-item Systemic Lupus Erythematosus (SLE) specific health-related quality of life (HRQOL) measure. It was adopted from ’’McElhone K., et al., 2007’’ for the QOL used in adults with Systemic Lupus Erythematosus (SLE). Translation from English into Arabic was done for this tool to assure accuracy.
3- Lupus awareness’s quiz:
It was a self-administered quiz to the patients with SLE. It was used to assess the level of knowledge for patients with SLE; it was adopted by Bellotti (2003). Translation from English into Arabic was done for this tool to assure accuracy.
Health promotion program for the patients with Systemic Lupus Erythematosus: it was designed and developed by the researcher in an Arabic language booklet in the light of related literature. The program is divided into 4 parts as follows; part one: general knowledge about SLE which includes (definition - incidence - morbidity and mortality). Part two: pathophysiology - causes - signs and symptoms. Part three: complications and diagnostic measures. Part four: medical management, life style changes, management of general problems of SLE such as (management of fatigue - pain control - stress management – control of infection - management of nausea and vomiting - oral ulcer management - managing of hair loss - controlling of blood pressure).
Results:
The results of the study showed that:
The mean age of patients included in the study was 29.487.51 and the majority of them (98.6%) were females. As regards the marital status, it was found that more than two thirds of the patients under the study (70%) were married. Furthermore, more than half of them (51.4%) had secondary educational level.
The minority of patients under the study (8.6%) had a positive SLE or other autoimmune disease history in family, and had primary degree family relations. Also, the minority of them (7.1%) were pregnant.
The highest mean and standard deviations post implementation of health promotion program were regarding all items of the lupus awareness with a highly statistically significant improvement regarding these items of the lupus awareness (P<0.001).
There was a highly statistically significant differences between the mean and standard deviation of disability index among the patients under the study pre and post implementation of SLE health promotion program (P<0.001).
More than half of patients (61.4%) complained of severe pain pre implementation of SLE health promotion program, which decreased post implementation of SLE health promotion program to one third (30.0%) with a highly statistically significant improvement among them (P< 0.001).
More than one third of the patients under the study (37.1%) were dissatisfied with their health status related to the disease pre-implementation of health promotion program, which decreased post implementation of health promotion program to less than one third of the patients under the study (24.3%) with a highly statistically significant improvement among them pre and post implementation of SLE health promotion program (P< 0.001).
More than three quarters the patients under the study (82.8%) had poor QOL related to the disease pre-implementation of SLE health promotion program, which decreased post implementation of health promotion program to less than one third (31.4%) with a highly statistically significant improvement among them (p<0.001).
There was a highly statistically significant relation regarding the total lupus awareness, the total disability and the total lupus QOL (P<0.001), while there was a statistically significant relation regarding the total pain (P<0.05), also there was no statistically significant relation regarding the total sexual satisfaction and the total satisfaction about health status (P>0.05).
There were highly statistically significant positive correlations between patients’ levels of awareness and their education level (P <0.001), and statistically significant positive correlations regarding their occupation (p<0.05), while there were no statistically significant correlations among the patients’ levels of awareness regarding their age and treatment cost (P>0.05).
There were highly statistically significant positive correlations between patients’ QOL and their education level (p<0.001), while there were no statistically significant correlations among the patients regarding their age, occupation and treatment cost (P>0.05).
There were highly statistically significant positive correlations between patients’ total QOL and total lupus awareness for patients under the study pre and post implementation of SLE health promotion program (P<0.001).
CONCLUSION:
The results of this study concluded that:
There was a highly statistically significant improvement regarding patients’ levels of awareness post implementation of SLE health promotion program. In addition, more than three quarters of SLE patients under the study had poor QOL related to the disease, which decreased post implementation of SLE health promotion program to more than one third with a highly statistically significant improvement among them. It was observed from the current study that there were highly statistically significant positive correlations between patients’ total QOL and total lupus awareness for SLE patients under the study pre and post implementation of SLE health promotion program. Moreover, there were highly statistically significant positive correlations between SLE patients’ levels of awareness and QOL and their socio-demographic characteristics as regards their education level. The implementation of SLE health promotion program has a statistically significant positive effect on the quality of life for patients with SLE which support the stated hypothesis.