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العنوان
Assessment of Mothers’ Knowledge and Practice Regarding Care of their Children Suffering from
Non-Hodgkin’s Lymphoma at Children’s Cancer Hospital (57357)/
المؤلف
Salah, Samah Alwy.
هيئة الاعداد
باحث / Samah Alwy Salah
مشرف / Wafaa El-Sayed Ouda
مشرف / Emad Ali Helmy Moussa
مشرف / Bothayna Nader Sadek
تاريخ النشر
2015.
عدد الصفحات
179 p. :
اللغة
الإنجليزية
الدرجة
ماجستير
التخصص
طب الأطفال
تاريخ الإجازة
1/1/2015
مكان الإجازة
جامعة عين شمس - كلية التمريض - تمريض الأطفال
الفهرس
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Abstract

Non-Hodgkin’s lymphoma (NHL) results from malignant proliferation of cells of lymphatic system. Although malignant lymphomas are generally restricted to lymphoid tissue such as lymph nodes, Payer’s patches, and spleen. Its occurrence in bone and primary central nervous system (CNS) can be rarely prevented in children (Yu et al., 2012).
Nursing role for caring of children suffering from NHL is important and vital because the child has many physical and psychological needs. In addition to performing specialized care, nurses help mothers to learn about the treatment, ways to cope with side effects, hospitalization, and recovery from the disease (Lindberg et al., 2013).
This study aimed to:
- Assess the mothers’ knowledge and practice regarding care of their children suffering from non-Hodgkin’s lymphoma at children’s cancer hospital (57357).
Research Question:
- Is there a relation between mothers’ knowledge and their practice regarding care of their children suffering from non-Hodgkin’s lymphoma at children’s cancer hospital (57357)? Subjects and Methods
Research Design:
Descriptive design was utilized for this study.
Research Setting:
This study was conducted at both outpatient and in-patient pediatric departments affiliated to children’s cancer hospital (57357), with the hospital being with highest admission rate of children suffering from NHL.
Sample size and characteristics:
A purposive sample that composed of 72 children with confirmed diagnosis of NHL at the previously mentioned setting. The inclusion criteria of the study involved children from both genders, aged from 1 day up to 18 years and all the mothers accompanying their children regardless their characteristics.
Tools and technique of data collection:-
Data was collected through the following tools:
1-A pre-designed questionnaire (Appendix II):
It was designed by the researcher after reviewing the related literature. It was written in simple Arabic language to suit the understanding level of studied mothers and their children. It was consisted of two parts: Part 1: Socio-demographic characteristics of the studied sample:-
- Demographic characteristics of the studied children including; age, gender, place of residence, level of education, number of siblings, child ranking in the family, reason and place of admission.
- Demographic characteristics of the studied mothers including; age, level of education, mother’s work status and family size.
Part 2: Mothers’ knowledge regarding care of their children suffering from non-Hodgkin’s lymphoma regarding knowledge about NHL, chemotherapy and its related problems and care of child suffering from NHL.
2-Observational Checklists: (Appendix III)
The observational checklists were adopted from Baraff, (2010), Edmonds, (2010), Fulton and Treon, (2010) and Gaylene et al. (2010). It was used to assess the actual mothers’ practice regarding care of their children suffering from NHL at children’s cancer hospital (57357). Four observational checklists were used including; hand washing, axillary temperature measurement, mouth care and cold compresses Each mother was observed during actual care of her child. Operational design
Pilot study:
A pilot study was conducted at December 2013, involving 10% of the expected total sample size (10) of children and their accompanying mothers. It was conducted to test the clarity and applicability of the study tools and the time required to fulfill each tool. The results obtained from the pilot study were helpful in the modification of the study tools where items were corrected, omitted and added as necessary. All children and their accompanying mothers in the pilot study were excluded later from the study sample.
Field Work
The actual field work was carried out over 6 months from the first week of January (2014) up to the end of June (2014). The researcher was available in the study setting five days/ week at the morning shift (9 am to 4 pm) from Sunday to Thursday. The actual work started by interviewing each mother and her child individually at the morning shift.
The researcher introduced herself to each mother and gave complete background about the study, its aim and expected outcomes. Tools were filled by the researcher and mothers where each mother and her child were interviewed individually for 30 to 50 minutes depending on her/ his child’s condition.
Results:
Findings of the current study can be summarized as the following:
1. Nearly two thirds of the studied children (63.9%) were males, while the rest of them (36.10%) were females. Also, more than two thirds of them (70.88%) were in the age group of 6 < 12 year.
2. Half of the studied children (50%) were living in rural areas and one third of them (33.3%) were ranked as the fifth child.
3. More than half of the studied mothers (54.2%), were in the age group between 30 < 40 years and nearly one third (31.9%) of them were illiterate. While, most of them (81%) were not working.
4. More than three quarters (77.8%) of the studied mothers were reported to have brought their children to hospital when they discovered the child’s illness, and the majority (90.3%) of them reported that their children received chemotherapy.5. Nearly two thirds of the studied mothers (61.1%) were having incorrect answers regarding definition and causes of NHL and more than one third (37.5%) of them reported correct and complete answers regarding manifestation of NHL. Also, approximately half (48.6%) of them reported incorrect answers regarding treatment of NHL.
6. The majority of the studied mothers (86%) were having correct and complete answers regarding goal of chemotherapy. While, only 15.3% of them reported correct incomplete answers regarding type of chemotherapy. Also, about half of them (47.2%) reported correct incomplete answers regarding methods of administration of chemotherapy and 37.5% of them reported incorrect answers regarding dose of chemotherapy.
7. Nearly two thirds of the studied mothers (63.9%) had correct and complete answers regarding side effects of chemotherapy, 40.3% of them had incorrect answers about instructions regarding chemotherapy and near to half (47.2%) of them had correct and complete answers regarding precautions for chemotherapy.
8. Most of the studied mothers (80.6%) reported complete answers regarding children’s problems related to NHL. More than one half (56.9%) of them reported correct and complete answers regarding signs and symptoms of oral mucositis, and half (50.0%) of them reported correct and complete answers regarding care of oral mucositis.
9. More than two thirds of the studied mothers (68.1%) had poor knowledge about NHL, one half (50.0%) of them had average knowledge regarding chemotherapy, and more than half (59.7%) of them had average knowledge regarding complications related to health problems of NHL.
10. More than half (56.9%) of the studied mothers had average knowledge, and only (11.1%) of them had good knowledge.
11. The majority of the studied mothers (86.1%) performed hand washing correctly while, more than one fifth (20.8%) of them were perform unsatisfactory practice regarding to mouth care.
12. The majority (87.5%) of studied mothers had satisfactory total levels of practice regarding to care of their children with NHL while, 12.5% of them had unsatisfactory total levels of practice.
13. There was no statistically significant differences (p<0.535) between mother’s total knowledge and their age. While there was a statistically significant difference between mother’s total knowledge and their educational level (p<0.048). Also, there was no statistical difference between mother’s total knowledge and their working status (p<0.62).
14. There was no statistically significant difference (p<0.803 -<0.417 - <0.679) between both groups of satisfactory practice and unsatisfactory practice regarding socio-demographic characteristics.
15. There was significant statistical difference (p<0.022) between mother’s total levels of knowledge and their actual practice regarding to care of their children suffering from NHL. Conclusion The current study concluded that most of the studied mothers’ had average knowledge and satisfactory practice regarding care of their children suffering from non-Hodgkin’s lymphoma. There was positive relation between mothers’ knowledge and their actual practice.